As a national non-profit company we are dedicated to assisting individuals with intestinal failure, including those reliant on Total Parenteral Nutrition (TPN) and Home Parenteral Nutrition (HPN). Our  mission aligns with Sláintecare's principles, focusing on person-centred, equitable, and integrated care informed by patients' experiences.  Our Approach is simple -  Equitable Access - Acute and Community Integration -Evidence-Based Practice  and Empowerment.

How We Support You - Patients and caregivers can expect: -  Guidance – Clear resources on intestinal failure, TPN, and HPN. - Peer Support Networks – Advocacy – Representation in national policy discussions for patient. - Collaboration with Clinicians – Support for delivering evidence-based care. 

We ensure: - care follows international best practices adapted to Ireland. - Access to reliable information and a supportive community. - You shape the future services in Ireland . We are dedicated to partnering with the HSE, clinical teams, and patients to create a service model where no one feels unsupported or unheard.

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About VIDA

• What VIDA Stands For:

  VIDA = Vital Intestinal Data for Advocacy.
  Our mission is to create a centralised national register for all TPN, HPN, and IF patients across Ireland.

• Why It Matters:

  • There is no national framework for HPN/TPN patients in Ireland.

  • Lack of consistent data → leads to service gaps, delayed care, and missed policy priorities.

  • VIDA fills this gap by mapping patient needs, informing national strategy, and supporting better outcomes.

Core Objectives

• Build a national register for all intestinal failure, TPN, and HPN patients.

• Provide real-time, anonymised insights for the HSE, clinicians, and researchers.

• Identify service gaps, waiting times, and cross-hospital variation.

• Support policy development aligned with Sláintecare and ESPEN guidelines.

Key Features

• Nationwide Coverage → capturing data across every CHO and acute hospital.

• Secure, GDPR-Compliant Platform → safeguarding patient privacy.

• Clinical Integration → working directly with consultants, dietitians, PHNs, and research teams.

• Evidence for Advocacy → using data to influence national health policy.

Project NOVA

Nutrition Outcomes, Value & Advocacy
Focus: Ireland’s First National Home Nutrition Digital App & Data Platform

“Connecting Patients, Clinicians & Carers Through Ireland’s First National Home Nutrition App”

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Project NOVA is revolutionising how TPN/HPN and intestinal failure patients manage their care. This secure national app empowers patients, carers, and clinicians with real-time data, digital care plans, and outcome tracking to improve care pathways and quality of life.

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About NOVA​

NOVA = Nutrition Outcomes, Value & Advocacy.
It’s Ireland’s first integrated national app for patients receiving TPN, HPN, or living with IF.

• Vision:

  To connect patients, hospitals, and policy-makers through a single digital ecosystem, supporting better decisions and better lives.

Core Objectives

• Develop a nationally connected app for patients, carers, and clinicians.

• Enable remote monitoring of key outcomes (line infections, admissions, weight trends, quality of life).

• Provide patients with personal dashboards and education resources.

• Give the HSE, policymakers, and researchers aggregated insights to improve services.

Key Features

• Patient Portal → Manage line care, medications, and PN prescriptions.

• Carer Support Hub → Easy access to resources, forums, and peer networks.

• Real-Time Data Sharing → Secure integration with hospital teams.

• Research-Ready Data → Supports clinical trials, policy planning, and academic collaboration.

Why NOVA Matters

• Currently, there’s no unified digital system for HPN/TPN care in Ireland.

• Patients rely on fragmented communication → delayed interventions.

• NOVA creates a single digital touchpoint, improving safety, quality, and patient experience.